Miracle Monday…Meet Landon!

Landon was diagnosed with epidermolysis bullosa (EB), a group of rare diseases that cause fragile, blistering skin. The blisters may appear in response to minor injury, even from heat, rubbing, scratching or adhesive tape. Unfortunately, there is no cure or treatment for this condition. The only things Landon can do is limit opportunities to cause issues, pain management and daily wound care. EB has been known to be fatal, but many kids go on to live long and fairly normal lives. This has been a life changing diagnosis for Landon’s parents, but they have stayed positive as they out things in place to allow him to live in a safe, healthy and as normal a life as possible.

Landon’s father is a BGSU Dance Marathon alumni. In all his years raising money for Children’s Miracle Network Hospitals, he never thought one day that his child would needed to be treated at one. But he is grateful that Mercy Health – Children’s Hospital is there for his family. The team at Mercy, has a plan in place if Landon ever has to come to the hospital, as he cannot be handled like any other patient. Landon’s dad now speaks at his alma mater and other area Dance Marathons about the importance of what the Dance Marathons do for their local Children’s Hospitals.

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